Social and Caregiver Support Area

From the moment a diagnosis of Alzheimer’s disease is received, we know that caregivers embark on a difficult and complex path, and they will need to activate a variety of both internal and external resources to cope with the disease.

At the Alzheimer Down Unit, in addition to providing medical care to our patients, we offer personalized counseling to caregivers at the time of diagnosis, as well as ongoing training and emotional support through educational workshops and family support groups.

Diagnostic Orientation Visit

Visita orientació

Receiving a diagnosis of Alzheimer’s disease can be a shock for both the affected person and their family, generating many doubts, fears, and concerns.

At the Alzheimer Down Unit, we offer an orientation visit to all families caring for a person with Down syndrome who has recently received a diagnosis of Alzheimer’s disease to provide specialized guidance.

If you are interested in receiving more information about these diagnostic orientation visits, you can write to the following email: unitatalzheimerdown@santpau.cat

Caregiver Support Group

Grups de suport

The caregiver support group is a space for caregivers of family members with Down syndrome and a diagnosis of Alzheimer’s disease to come together. The aim of this group is to improve the quality of life and emotional well-being of caregivers, providing them with a space to:

  • Receive emotional support
  • Acquire knowledge about the disease
  • Share common experiences
  • Express emotions and thoughts without fear in a safe and confidential environment
  • Find a space for respite
  • Enhance positive social relationships
  • Alleviate caregiver burden

How is this activity conducted?

  • In a hybrid format (both in-person and online)
  • In groups of 10 to 15 people
  • 90-minute sessions
  • Frequency: 3 meetings a year

When: Tuesdays, in the afternoon (from 18:00 to 19:30)

Meeting location: FCSD headquarters (c/Comte Borrell 201-203)

If you are interested, please write to: unitatalzheimerdown@santpau.cat

Psychoeducational Workshops

Tallers psicoeducatius

The diagnosis of Alzheimer’s disease has an emotional impact and involves significant changes within the family.

Caring for a person with this diagnosis is not easy. Alzheimer’s disease results in a progressive deterioration of the patient’s cognitive abilities and may be associated with behavioural changes that are not always easy to understand and manage.

At the Alzheimer Down Unit, we offer training for caregivers, providing them with basic knowledge about Alzheimer’s disease in individuals with Down syndrome and offering strategies for better managing problematic behaviours that may arise during different stages of the disease.

A well-informed caregiver is a prepared caregiver.

Who is it for?

Family members and caregivers of individuals with Down syndrome and Alzheimer’s disease.

How are the workshops conducted?

  • In a hybrid format (both in-person and online for accessibility from anywhere)
  • In small groups
  • 60-minute sessions
  • Training led by experts in Down syndrome and dementia
  • Frequency: one session per month (between December and June)
  • When: Monday, from 6:00 p.m. to 7:30 p.m. (includes 30 minutes to ask questions).

If you are interested, please write to: unitatalzheimerdown@santpau.cat